Question 12915 — dependency

Summary

Mr. Romain Daubié draws the attention of the Minister of Health, Families, Autonomy and People with Disabilities to the alarming situation of people suffering from Lewy body disease (MCL) and the increasing precariousness of their family caregivers. Today, MCL is identified as the second most common neurocognitive disease after Alzheimer's disease, affecting approximately 200,000 people in the country. national. Characterized by a great complexity of symptoms combining cognitive, motor and psychiatric disorders, it nevertheless remains largely unknown to a significant part of health professionals and the general public. This lack of knowledge leads to harmful diagnostic errors and treatment that is often unsuitable for the specific needs of patients. Mobilized associations and healthcare personnel underline This underlines the urgency of strengthening the initial and continuing training of medical and paramedical personnel in order to guarantee early diagnosis and dignified support. Furthermore, the MP wishes to bring to the attention of the Minister the social and financial situation in which many family caregivers find themselves. Some citizens, forced to abandon all professional activity to work full-time of a dependent close relative, receive no direct financial assistance, leaving them without their own resources in the face of an immense workload and emotional burden. While these caregivers constitute an essential pillar of the solidarity system and make it possible to avoid costly institutionalizations for the community, the absence of statutory and monetary recognition of their commitment must be reviewed. As part of the strategy for caregivers and access to care, he asks what concrete measures the Government intends to take to specifically integrate Lewy body disease into future national public health plans. He also questions the legislative or regulatory developments envisaged to ensure a dignified income and reinforced social protection for family caregivers carrying out a full-time assistance mission. time with a loved one.

Machine translation from French. The official text remains authoritative.

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