Question 13328 — diseases

Summary

Mr. Yannick Favennec-Bécot draws the attention of the Minister of Solidarity and Health to research and treatment of pediatric cancers. Every year, nearly 2,500 children and adolescents are diagnosed with cancer, and 500, or 20% of them, will die from it. Cancer is therefore the leading cause of child mortality from disease. However, less than 3% of public funding for cancer research is allocated to pediatric cancers. Consequently, few researchers have the means to get involved in this fundamental research work which is essential to better understand childhood cancers and develop appropriate treatments. According to various studies, 20 million euros per year are missing from research into pediatric cancers. If the third cancer plan made the fight against pediatric cancers a priority, the The resources allocated are unfortunately not sufficient. This is why he asks him to kindly indicate his intentions in this area and in particular if a fourth cancer plan is envisaged when the current one comes to an end in 2019. In addition, many families of children suffering from cancer or serious illnesses find themselves in a difficult financial situation, during the child's illness or after their death. The association Eva for life, with the support of professionals and families, requests the maintenance and revaluation of the daily parental presence allowance (AJPP) during the actual duration of the illness (compared to 310 days currently, including when the illness lasts longer and the parent, sometimes alone, must accompany the child), the extension of public death benefit to the parents of a deceased child. Today, this amount of 3,415 euros paid by the CPAM to the beneficiaries of a deceased adult excludes the death of a child. He asks her what response she intends to give to these legitimate requests.

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