Question 14503 — diseases

Summary

Mr. Philippe Juvin draws the attention of the Minister of Health, Families, Autonomy and People with Disabilities to the management of long-term covid and myalgic encephalomyelitis (ME/CFS), particularly in patients with severe exercise intolerance (PEM/PENE), causing serious and lasting disabilities. Many patients and families warn of the persistent diagnostic errors, the insufficiency of the pathways of appropriate care, as well as the absence of a biomedical research strategy that meets the challenges. This situation leads some patients to extreme isolation, a major loss of autonomy and breakdowns in care, even though several international health authorities now recognize the clinical reality of these post-infectious syndromes. In 2022, the Zumkeller law was unanimously passed to detect and identify long covid pathologies then take care of patients everywhere across the territory. However, the implementing decrees have still not been issued and patients are forced to travel long distances to find a center suited to their needs. In a previous written question, the Government responded in 2023 on the upcoming establishment of a platform, in connection with the TousPartenairescovid association. He therefore wants to know if this platform really exists and, if not, when it will be implemented. Thus, he asks him if the Government intends to issue the decrees in question in order to respond to the emergency of patients suffering from long covid. He also asks him if he intends to make nursing staff aware of this pathology to better guide patients.

Machine translation from French. The official text remains authoritative.

Timeline

No timeline events have been ingested for this record yet.

Votes

No vote records are attached yet.

Versions

No version snapshots stored. Document URLs remain at the source.

Documents

No documents linked.

Sponsors

No sponsors or actors listed by the source.

Related records

No cross-record relationships stored yet.