Question 14595 — people with disabilities

Summary

Ms. Laure de La Raudière alerts the Secretary of State, to the Prime Minister, responsible for disabled people, on the diagnosis of people suffering from “dys” disorders, the recognition of their disability, and the provision of care. Around 8% of school-age children suffer from “dys” disorders. A lack of detection and appropriate treatment has repercussions on school, professional and important social. However, in France, obtaining a diagnosis and follow-up constitutes a real obstacle course. In 2013, the Commission on Birth and Child Health (CNNSE) judged the care to be heterogeneous and unequal across the territory. The High Authority for Health (HAS) published on January 31, 2018, a guide for parents, caregivers and teachers on this subject. In this document, HAS wanted to detail the journey of reference health of children with language and learning disorders. Three levels of healthcare use have been defined by the HAS. However, from the first level, there is mention of recourse to a doctor, but also to liberal rehabilitators who are listed: “speech therapist (if it is a language disorder), sometimes the occupational therapist or the psychomotor therapist (for writing or motor skills), or the psychologist clinician specializing in neuropsychology. However, apart from the speech therapist, other specialists are not covered by social security: a neuropsychological assessment costs between 250 and 1,000 euros, an occupational therapy assessment between 150 and 300 euros. The sessions, which allow the child to put in place strategies to overcome their disability, are also extremely expensive and not reimbursed (between 50 and 80 euros). Without Note that in “medical deserts”, the lack of these specialists is dramatic. Parents then turn to multidisciplinary referral centers, present in each department, which find themselves overwhelmed, even though they are initially reserved for the most complex cases. There is a real inequality between children carrying these disorders, depending on where they live and the means of their parents. It is about truly a double punishment which jeopardizes the future of many children, often very intelligent (“dys” disorders are frequently associated with a high IQ), who find themselves in situations of great suffering. This diagnostic work is prior to any request for recognition of disability by the MDPH, recognition of disability which is increasingly difficult to obtain, the MDPH considering that the support plan personalized (PAP) allows us to resolve the problems that arise within the school and reject more and more frequently the files of “dys” children. However, the PAP does not give rise to any right to any reimbursement of care. “Dys” disorders never go away. These are not temporary difficulties. On the other hand, with targeted support, a compensation strategy can be put in place. Also, and taking into account the scale of this problem (two children per class on average), she would like to know if the Government is considering reimbursement for assessments and psychomotor, neuropsychology and occupational therapy sessions for people suffering from “dys” disorders.

Machine translation from French. The official text remains authoritative.

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• Laure de La Raudière · auteur

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