Question 14914 — people with disabilities

Summary

Mr. Sébastien Saint-Pasteur draws the attention of the Minister Delegate to the Minister of Health, Families, Autonomy and Disabled People, responsible for autonomy and disabled people, to the absence of reliable, exhaustive and regularly published national data concerning children awaiting admission to a medical-educational institute. The report of the General Inspectorate of Social Affairs devoted to institutes medico-educational institutes, entitled Medical-educational institutes facing the challenge of transforming the offer, published in February 2026, recalls the central place of EMIs in the medico-social offer for children and adolescents with disabilities. With around 1,380 establishments and 74,700 places, IMEs represent almost two thirds of the capacity to accommodate children and adolescents supported in medico-social establishments. THE However, the report underlines that the information available remains insufficient to fully objectify needs, inform public debate and effectively manage the transformation of the offer. This insufficiency is particularly worrying with regard to waiting lists. The IGAS mission notes that field reports indicate sometimes significant shortages of places, while emphasizing the difficulty of distinguishing what is due to a lack of supply, heterogeneous admission practices or a lack of reliability of monitoring tools. It also indicates that, in the survey conducted among a panel of EMIs, the average waiting time was twenty-one months, with differences ranging from one month to five years. Beyond the question of available places, this lack of consolidated data prevents precise measurement of the gap between notifications pronounced by the MDPHs and their effective implementation. It also makes the evaluation of the so-called 50,000 solutions plan more difficult, since the creations or transformations of the offer cannot be fully appreciated without detailed knowledge of the needs not covered, territory by territory, age by age and type of orientation by type of orientation. The IGAS report also makes an explicit recommendation in this sense, in proposing to publish on a biannual basis a reliable inventory of waiting lists by department, under the aegis of the CNSA. It also recommends integrating into ES-Handicap surveys a monitoring of the actual weekly support times of children taken care of by IME or DIME, including school inclusion times and harmonizing admission processes by specifying the very notion of a waiting list. The report finally insists on the need to make the ViaTrajectoire tool more reliable and to ensure its interoperability with the MDPH common information system. These findings are consistent with recurring alerts from families, associations and professionals. Many children have an orientation towards an EMI without this orientation being able to be followed up. Others benefit from a partial solution, far removed from the real need, or remain maintained in school or family systems by default, at the cost of great tension for families, educational teams and establishments. Under these conditions, he asks whether the Government intends to implement the IGAS recommendations relating to the transparency of data on IME waiting lists. He would like to know according to which timetable the CNSA could publish a biannual inventory, department by department, children with a notification of referral to an IME or a DIME without effective admission. He also asks if the Government intends to nationally harmonize the definition of a waiting list, make the use of ViaTrajectoire more reliable, ensure its interoperability with the MDPH information system and publish indicators making it possible to monitor not only the places created or transformed, but also the actual effectiveness of notifications, the average waiting times and the weekly support times offered to the children concerned.

Machine translation from French. The official text remains authoritative.

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