Question 15068 — diseases

Summary

Mr. Damien Maudet draws the attention of the Minister of Health, Families, Autonomy and People with Disabilities to the lack of publication of the decrees implementing Law No. 2022-53, which provides for the creation of a referral and care platform for people with long-term covid. This situation has direct and worrying consequences for patients. Long covid today constitutes a chronic post-infectious and multisystem pathology, affecting nearly 2 million adults in France, including around 700,000 severe forms. Its neurological, cardiovascular, immune or metabolic effects are documented, as are the associated risks: cardiovascular complications, worsening with exercise, cerebral hypometabolism, dysautonomia. Despite the adoption of the law four years ago, the decrees necessary for its application have still not been published. Several associations, including Covid long Limousin, alerted the ministry without obtaining a response. This deficiency leads to persistent medical wandering, strong territorial inequalities in access to off-list ALD, the absence of national directives for CPAM medical advisors and refusals of daily allowances or category 2 disability for patients who are nevertheless incapable of to work. Some thus risk job loss and lasting insecurity. Families of sick children even have to turn to consultations abroad. The publication of the decrees must be accompanied by recognition of long-term covid as a chronic disease, a structured care pathway, specialized multidisciplinary centers, appropriate training for health professionals and a real policy of prevention (facilitated access to tests, information campaigns, access to vaccines and preventive treatments). In this context, he asks her if she intends to immediately publish the implementing decrees of Law No. 2022-53 in order to guarantee adequate care for all people with long-term covid.

Machine translation from French. The official text remains authoritative.

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