Question 15228 — diseases

Summary

Mr. Bartolomé Lenoir questions the Minister of Health, Families, Autonomy and People with Disabilities on the unequal treatment of the protection of workers suffering from Parkinson's disease in the public service and in the general system. Parkinson's disease is a degenerative, progressive and irreversible neurological condition. Recognized as such by the medical community, it causes increasing disabilities (motor, cognitive, behavioral disorders), which profoundly alter the ability of affected people to exercise professional activity. It affects more than 270,000 people in France, a significant proportion of whom are still working at the time of diagnosis. However, in the two major protection regimes applicable to assets, people suffering from Parkinson's disease come up against the same gap: the absence of income protection system adapted to the duration and severity of their pathology. In the civil service, the long-term leave (CLD) system provides for continued treatment for up to five years for certain serious illnesses. The list of illnesses giving entitlement to this leave, established by decree, includes cancer, tuberculosis, mental illnesses, poliomyelitis and HIV infection. Parkinson's disease is not there. Agents who suffer from this can only claim long-term sickness leave (CLM), which is significantly less favorable, particularly in terms of maintaining remuneration and retirement rights. This exclusion creates a clear break in equality between civil servants whose medical situation is of comparable seriousness and duration. It is all the more incomprehensible as the modification of this list falls under the sole regulatory power. There is no equivalent to long-term civil service leave in the general system. Employees in the private sector suffering from Parkinson's disease benefit, under the long-term condition (ALD), from 100% coverage of care linked to their pathology. But the ALD system does not guarantee any particular income protection beyond the statutory daily allowances. common, limited in their duration and amount. The employees concerned are therefore exposed, in the long term, to a significant loss of income and to a lasting weakening of their financial situation. A legislative or conventional development allowing the creation of a specific income maintenance system for workers suffering from severe neurodegenerative diseases, within the framework, for example, of a reform of the care of long-term incapacity for work, could meet this unmet need. In both cases, active people diagnosed at an often young age find themselves, at the very moment when they are faced with a very disturbing medical announcement, confronted with financial precarity that existing law cannot prevent. Consequently, with regard to the civil service, he asks whether the Government intends to modify by decree the list of illnesses giving entitlement to long-term leave, in order to include Parkinson's disease and, more broadly, severe degenerative neurological illnesses meeting the same criteria of severity and progression. If so, within what time frame and according to what procedure? Regarding the general regime, a reflection on the creation of a reinforced income protection system for employees in the private sector suffering from neurodegenerative diseases, could it be carried out within the framework of a legislative reform or an incentive for sectoral collective bargaining? For both regimes, are transitional measures envisaged for people already in employment who suffer, due to these shortcomings, an uncompensated loss of income and retirement rights? Finally, he asks him if the Government plans to entrust to the General Inspectorate of Social Affairs (IGAS) a cross-sectional mission to evaluate systems for protecting assets suffering from neurodegenerative diseases, with a view to formulating harmonized proposals between the two regimes.

Machine translation from French. The official text remains authoritative.

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