Question 15249 — people with disabilities

Summary

Mrs. Sandrine Nosbé draws the attention of the Minister of Health, Families, Autonomy and People with Disabilities to the persistent failures in the application of the “Creton” amendment, codified in the law of January 13, 1989. This system allows the retention, on an exceptional basis, of young adults with disabilities aged over twenty years in medical-educational establishments, pending referral to a structure adapted to their needs. Designed as a transitional measure, to avoid any disruption in support, it is today largely unknown in its effective implementation. Several consistent reports indicate that departmental centers for disabled people do not apply this amendment, thus leaving families without a reception solution. Cohabitation, within the same structure, of children and of adults with distinct needs generates organizational dysfunctions that school management cannot absorb without dedicated and lasting budgetary support. The Department of Research, Studies, Evaluation and Statistics already estimated in 2014 the number of young adults covered by this system at 5,700, a figure which has not decreased since then. Families, for their part, find themselves in a situation of exhaustion and great precariousness. Due to a lack of space in an adult structure and a lack of effective application of the “Creton” amendment, they are forced to take care of their adult child with a disability themselves, without sufficient support. This reality can lead to the total or partial cessation of professional activity of one of the parents. If the Government announced the creation of 50,000 new solutions by 2030, this cannot exempt public authorities from ensuring the effectiveness of existing rights now. Given the need to guarantee the effective application of the “Creton” amendment by all departmental centers for disabled people, the Deputy asks the Minister what concrete and immediate measures the Government intends to take to this end and what instructions are planned for these homes to put an end to refusals of care contrary to the law. She also asks what specific and long-term funding she intends to allocate to medical-educational establishments to enable them to assume this legal obligation without degrading the quality of support for the children they also welcome. Finally, she would like to know what reinforced support measures it intends to put in place in the very short term for families whose young disabled adult does not benefit from any reception solution, due to a lack of places available in adapted structures and a lack of effective application of the “Creton” amendment.

Machine translation from French. The official text remains authoritative.

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