Question 16047 — diseases

Summary

Ms. Émilie Bonnivard draws the attention of the Minister of Solidarity and Health to the situation of people suffering from fibromyalgia. This rare disease causes muscle and joint pain, fatigue, sleep disorders and cognitive disorders. It would affect between 1.3 and 3 million people in France. Although recognized as a disease in its own right by the World Health Organization, fibromyalgia is not still officially recognized as such by France. This recognition would allow better consideration of the disease by doctors and better care and recognition of patients. Fibromyalgia nevertheless remains considered a syndrome and not a disease. The High Authority for Health has included, in its work program, the production of recommendations relating to the standard treatment process. care of chronic pain patients for optimal collaboration between city and chronic pain structures. These recommendations for good practice will also contribute to structuring the health pathway of people suffering from fibromyalgia in order to better coordinate care and therapeutic choices and therefore better guide patients. The publication date of these recommendations was scheduled for fourth quarter 2018. She would therefore like to know the progress of the reflections and work of the Ministry of Solidarity and Health on fibromyalgia.

Machine translation from French. The official text remains authoritative.

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