Question 16320 — diseases

Summary

Mr. Kévin Mauvieux draws the attention of the Minister Delegate to the Minister of Labor, Health and Solidarity, responsible for health and prevention, to the dental disease amelogenesis imperfecta, particularly affecting children under 6 years old. These dental conditions of genetic origin are largely unknown to general practitioners, although amelogenesis imperfecta manifests itself from a very young age, at the time of the eruption of the first teeth. To date, no curative treatment exists for this pathology. The impact of this disease on children is devastating, including dental pain, increased sensitivity to temperature variations and sugary foods, as well as difficulty or even impossibility in chewing and speaking, inevitably leading to a significant disruption of their social integration. due to the aesthetic impact of the disease. Although the first dental consultation recommended and covered by the primary health insurance fund (CPAM) occurs at the age of 6, many children remain undiagnosed before this age. Parents are then given advice on oral and dental hygiene or food, while most municipalities do not have specialists in pediatric dentistry. (pedodontists), requiring patients to travel long distances several times each year to receive appropriate care. Furthermore, given the genetic nature of this disease, it is common for several members of the same family to be affected by amelogenesis imperfecta, which results in considerable costs for these families, sometimes tens of thousands of euros. He asks him if the Government plans to set up specific treatment or care pathways for this disease, which is little known in medical circles but is well known in the daily lives of these families whose child is affected by amelogenesis imperfecta.

Machine translation from French. The official text remains authoritative.

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1. 19 March 2024

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• Kévin Mauvieux · auteur

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