Question 17088 — diseases

Summary

Ms. Josiane Corneloup draws the attention of the Minister of Solidarity and Health to the issue of Tarlov's disease. This pathology causes chronic disabling pain which can lead to total motor incapacity, disrupting the daily emotional, social and professional life of patients. Treatments for this disease involve specialized long-term care with therapeutic and analgesic purposes; gold the tarlovians applications for long-term ALD 30 conditions (ninth disease: serious forms of neurological and muscular conditions) are often refused. Although this pathology is already codified and published at the WHO level and listed as a rare disease on the ORPHANET server, it does not appear in the national database of rare diseases, which makes it a doubly orphan pathology. She therefore asks for his intervention so that this pathology is eligible for the title of long-term condition (ALD 30) as the ninth disease relating to serious forms of neurological conditions, and that Tarlov's disease is recognized and registered as a rare disease so that people suffering from this pathology can be taken care of in the best possible conditions.

Machine translation from French. The official text remains authoritative.

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