Question 17346 — diseases

Summary

Mr. Hervé Saulignac draws the attention of the Minister of Solidarity and Health to the recognition and treatment of fibromyalgia, which affects 2% to 5% of the French population. Fibromyalgia is a disease characterized by a chronic muscular pain condition extended or localized to various regions of the body, which manifests itself in particular by tactile pain and persistent fatigue. Fibromyalgia was coded as rheumatism not specified in the International Classification of Diseases (ICD) and since January 2006, it is now recognized as a disease in its own right. However, since then, the causes and treatment of fibromyalgia have made too little progress. An INSERM report, promised for several years, on the knowledge resulting from international and multidisciplinary research on fibromyalgia, is announced for the end of March 2019. Furthermore, the High Health Authority is working on recommendations on the management of painful patients. These were due in the fourth quarter of 2018. In the meantime, the situation is difficult both for patients and those around them, knowing that diagnosis and treatment are done on a case-by-case basis, very unevenly depending on the department. They expect coherent and harmonized treatment between the different contacts: specialists, MDPH, health funds to avoid financial and social insecurity. Also, he would like to know, on the one hand, if the recommendations of the HAS have been made and, on the other hand, if the Government intends to put in place a national plan so that this disease is correctly diagnosed and managed effectively, everywhere in the territory.

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