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19608

Question 19608 — health

answeredFrance· National Assembly· FR

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7 June 2019

Summary

Ms. Nadia Ramassamy questions the Minister of Solidarity and Health about the protection of data contained in the shared medical file. Provided for by the bill relating to the organization and transformation of the health system, the generalization of the shared medical file (DMP) is currently the subject of a vast communication campaign aimed at its promotion. Nevertheless, this project launched fifteen years ago and whose cost is estimated between 600 million and 1.5 billion euros, raises many questions in terms of protection of private data. Indeed, following this generalization, each French person will be able to open their own DMP with or without their attending physician. At first glance, this virtual file combines all the so-called advantages: it allows you to store your health information, which is sensitive data according to the GDPR (General Data Protection Regulation). data), on a single platform, to have easy access to it, to simplify the consultation of medical histories which makes it possible to avoid unnecessary examinations, to gain efficiency and speed in the treatment of medical emergencies and to adapt to medical nomadism. However, the digital centralization of all treatments, all test results, all analyzes and all patient prescriptions is a risk. major for data confidentiality. Indeed, from GAFAM to hackers, this data turns out to be valuable loot, potentially allowing blackmail, filing, invasion of privacy and sale by and to private actors who are not very careful. Didn't Facebook, in the United States, according to the Wall Street Journal, begin in 2017 to contact hospitals with the aim of collecting the anonymized health data of their patients for associate them with social network user accounts in order to offer them personalized health care? In Singapore, did the authorities not reveal, at the end of February 2017, that an American national had disclosed with the complicity of a doctor on the internet the identities and addresses of 14,200 HIV carriers? What will the State do when this DMP is hacked? Has the State provided the human, financial and technical resources sufficient to ANSSI (the National Information Systems Security Agency) to protect this data? What reparations for those whose HIV status has been revealed to their colleagues? And for those who have been refused a loan or who have seen their insurance premiums explode? Is it up to an insurer, albeit a public one, to manage these masses of e-data? Should we, once again, entrust doctors with a new task? administrative at a time when their medical time is reduced? Are the leaks of private data worth the savings measures announced for Health Insurance? Are practitioners' current software compatible with that of the DMP? Thus, she asks him what the Government intends to do to secure health data, an integral part of the private lives of the French.

Machine translation from French. The official text remains authoritative.

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