Question 24758 — diseases

Summary

Mr. Xavier Breton draws the attention of the Minister of Solidarity and Health to the deadline of the 2014-2019 neurodegenerative diseases plan. With a budget of 470 million euros over five years for the concrete implementation of 96 measures dedicated to the fight against three main pathologies (Alzheimer's, Parkinson's and multiple sclerosis), the actors involved in supporting people suffering from Alzheimer's disease or an illness related company believe that its results do not meet the expectations of those affected by its deployment. As a reminder, the 2008-2012 Alzheimer's plan consisted of 44 measures for a dedicated budget of 1.6 billion euros. The reality of caring for people with cognitive disorders and supporting their caregivers encounters very high costs on a daily basis, too often exceeding capacities. finances of the families concerned. There are several reasons for this, the inadequacy of the dependency assessment grid to the needs of people with cognitive disorders, APA funding unsuitable for daily reality and the evolution of the disease, the cost of providing care at home or in establishments which is too high for thousands of families and finally a territorial inequality in the distribution of structures and services. accompaniment. It is estimated today that 1.2 million people are affected by Alzheimer's disease or a related illness in France: one person in three is nevertheless not diagnosed. With 225,000 new cases each year, Alzheimer's disease is the most common neurodegenerative disease and will affect more than 1.8 million people by 2050. Faced with this observation, he asks what is planned in the future “old age and autonomy” reform, currently being drafted to strengthen support for people with cognitive disorders. He would like to know when the future plan will be announced as well as the amount of its funding to respond to the challenges of these pathologies.

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