Question 35206 — diseases

Summary

Mr. Jean-Paul Lecoq draws the attention of the Minister of Solidarity and Health to the need for recognition of endometriosis, in particular through the need for recognition by the medical profession, but also through the inclusion in the list of long-term conditions (ALD30) of this disease. Endometriosis affects many women, affecting between 10% and 25% of women. However, this chronic gynecological disease is progressive, disabling on a daily basis, and for the moment incurable. Many patients report continuous and significant pain, affecting their personal and professional lives and impacting their mental health. Certain surgical procedures such as removal of the uterus can reduce pain without curing it. It is therefore regrettable that the removal of the uterus is perceived as the last hope for these women and that doctors consider hysterectomy as a cure. Some doctors even suggest correlations between infertility and endometriosis. The diagnosis and treatment are like an obstacle course for each of them. Many patients take several years to meet health professionals who take them seriously and who listen to them. Exclusion of the list of ALD30 is advanced due to disparities in presentation, severity and evolution among patients. If they can request to be treated for a non-listed condition (ALD31), endometriosis generally does not meet the ALD31 criteria. Indeed, in the case of this pathology it is impossible to correlate the location, extent, quantity of lesions or nodules with pain and disability. generated, as well as predicting the progression of the disease. On the other hand, care is completely unequal across the territory, with communities more inclined to accept ALD31 than others. It draws attention to the need to go even further in favor of patients suffering from endometriosis by placing it in the list of ALD30 to modify the absence of information and training within the medical profession, diagnosis times as well as the way patients are viewed; he asks him his intentions on this subject.

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