Question 40585 — people with disabilities

Summary

Mr. Guillaume Chiche draws the attention of the Secretary of State to the Prime Minister, responsible for people with disabilities, to the status of family caregivers and the care of people with disabilities at home. Although progress has been made in recent years to take into account the particular situation of family caregivers and make their daily lives easier, the fact remains that certain aspects still remain difficult and public services do not always sufficiently meet their needs. Since March 1, 2016, the status of the family caregiver takes into account the new right to respite. This text clarified the situation of family caregivers by granting them a status which gives them rights in terms of leave, training and even financial aid. Indeed, family caregivers are actors essential for home care. The commitment of the family caregiver entails significant costs, beyond financial expenses, the family caregiver may neglect their own physical and mental health and this can have a negative impact on their professional and personal life. In order to support them and relieve them on a daily basis, some self-employed family caregivers call on caregivers to carry out certain tasks. (toilet, cleaning). However, the costs of certain services are not covered in full by the departmental compensation fund and the disability compensation benefit. They then assume an out-of-pocket cost of up to 700 euros per month. However, these are significant financial aids, because they support families and give them the opportunity to take some time off. Without these aids, it is difficult for them to take care of a loved one with a disability, which risks having a major impact on their daily lives and jeopardizing their ability to stay at home. In this regard, he wishes to know whether measures will be implemented to improve the provision of care for disabled people at home in order to guarantee their continued residence at home and ensure the well-being of non-employee family caregivers.

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