Question 9032 — children

Summary

Mr. Frédéric Boccaletti questions the Minister to the Minister of Labor, Health, Solidarity and Families, responsible for health and access to care, about support for families whose child is affected by the disease. Bill No. 277 initiated by Mr. Vincent Thiébaut, aimed at optimizing the protection and support of parents of children suffering from cancer, serious illnesses and disabilities, was voted unanimously of deputies on December 4, 2024. Since then, the ministry has not put it on the Senate agenda. However, its application would respond to a social emergency for hundreds of children and their families (“zero charges” for city care provided to children avoiding the renunciation of this essential care, right to temporary non-medical accommodation close to hospitals for parents who live far away and measures of long-awaited administrative simplifications). On the other hand, an amendment also carried by MP Thiébaut then by Senator Schalck aimed at allocating an additional 15 million euros to research on pediatric cancers, or 20 million euros annually, was voted at the end of 2024. This budget, finally allocated for 2025 after not having been taken into account initially, is directly linked to saving lives of children. Thousands of families are afraid of not seeing it last. It would be inconceivable for these families affected by the disease and even more so for the national representation and the French people, that savings would be made on fundamental, epidemiological and clinical research on childhood cancers. He therefore asks him when he will do what is necessary to include bill no. 277 in the Senate agenda. He also asks whether the fund dedicated to research into pediatric cancers will be sustainable for 2026.

Machine translation from French. The official text remains authoritative.

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