MD-CARE Act

Summary

Muscular Dystrophy Community Assistance, Research and Education Amendments of 2001, or the MD-CARE Act - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH), in coordination with specified national research institutes, to: (1) expand research and related programs concerning various forms of muscular dystrophy, including Duchenne, myotonic, and facioscapulohumeral muscular dystrophy. Requires the Director to: (1) award grants and contracts for establishing at least five related centers of excellence; and (2) provide for a related tissue donation program. Requires the Secretary of Health and Human Services to establish the Muscular Dystrophy Coordinating Committee to coordinate NIH programs and other Federal programs. Authorizes the Secretary, through the Centers for Disease Control and Prevention, to: (1) award grants and cooperative agreements for muscular dystrophy data collection and analysis; and (2) conduct a National Muscular Dystrophy Surveillance Program. Requires the Secretary, through the Centers, to establish at least three centers of excellence in muscular dystrophy epidemiology. Requires the Secretary to establish a program to provide professionals and the public with muscular dystrophy information.

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3 official files

• Introduced in Senate (text)

  Introduced in Senate · EN · 1 May 2001

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• Introduced in Senate (PDF)

  Introduced in Senate · EN · 1 May 2001

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• Introduced in Senate

  summary · EN · 1 May 2001

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