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United States · Bill · HR

H.R. 2295 (110th)

ALS Registry Act

openUnited States· United States Congress· EN

Introduced

14 May 2007

Last action

31 October 2007 · Calendars

Status

Read the second time. Placed on Senate Legislative Calendar under General Orders. Calendar No. 457.

Sponsors

Rep. Engel, Eliot L. [D-NY-16], Rep. Terry, Lee [R-NE-2], Rep. Waxman, Henry A. [D-CA-33], Rep. Upton, Fred [R-MI-6], Sen. Markey, Edward J. [D-MA], Rep. Whitfield, Ed [R-KY-1], Rep. Towns, Edolphus [D-NY-10], Rep. Shimkus, John [R-IL-15], Rep. Rush, Bobby L. [D-IL-1], Rep. Fossella, Vito [R-NY-13], Rep. Wynn, Albert Russell [D-MD-4], Rep. Bono, Mary [R-CA-44], Rep. Green, Gene [D-TX-29], Rep. Ferguson, Mike [R-NJ-7], Rep. Capps, Lois [D-CA-24], Rep. Myrick, Sue Wilkins [R-NC-9], Rep. Doyle, Michael F. [D-PA-14], Rep. Allen, Thomas H. [D-ME-1], Rep. Schakowsky, Janice D. [D-IL-9], Rep. Solis, Hilda L. [D-CA-32], Rep. Gonzalez, Charles A. [D-TX-20], Rep. Inslee, Jay [D-WA-1], Sen. Baldwin, Tammy [D-WI], Rep. Ross, Mike [D-AR-4], Rep. Weiner, Anthony D. [D-NY-9], Rep. Matheson, Jim [D-UT-2], Rep. Butterfield, G. K. [D-NC-1], Rep. Barrow, John [D-GA-12], Rep. Ros-Lehtinen, Ileana [R-FL-27], Rep. Rangel, Charles B. [D-NY-15], Rep. McCrery, Jim [R-LA-4], Rep. Stark, Fortney Pete [D-CA-13], Rep. Goode, Virgil H., Jr. [R-VA-5], Rep. Kennedy, Patrick J. [D-RI-1], Rep. Gerlach, Jim [R-PA-6], Rep. Rothman, Steven R. [D-NJ-9], Rep. Burton, Dan [R-IN-5], Rep. Emanuel, Rahm [D-IL-5], Rep. Shays, Christopher [R-CT-4], Rep. Higgins, Brian [D-NY-26], Rep. Fallin, Mary [R-OK-5], Rep. Cohen, Steve [D-TN-9], Rep. Boustany, Charles W., Jr. [R-LA-3], Rep. Murphy, Patrick J. [D-PA-8], Rep. Smith, Christopher H. [R-NJ-4], Rep. McDermott, Jim [D-WA-7], Rep. Brown, Henry E., Jr. [R-SC-1], Del. Norton, Eleanor Holmes [D-DC-At Large]

Subjects

Healthcare, Environment, Transport

Source updated

5 December 2025

Healthcare · Environment · Transport

Summary

ALS Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data. Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS. Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders. Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy. Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 14 May 2007

    Introduced

    Introduced in House

    Source: IntroReferral

  2. 14 May 2007

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  3. 14 May 2007

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  4. 14 May 2007

    Introduced

    Sponsor introductory remarks on measure. (CR E1042)

    Source: IntroReferral

  5. 14 May 2007

    Introduced

    Introduced in House

    Source: IntroReferral

  6. 19 July 2007

    Committee

    Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .

    Source: Committee

  7. 19 July 2007

    Committee

    Subcommittee Consideration and Mark-up Session Held.

    Source: Committee

  8. 27 September 2007

    Reported

    Ordered to be Reported (Amended) by Voice Vote.

    Source: Committee

  9. 27 September 2007

    Committee

    Committee Consideration and Mark-up Session Held.

    Source: Committee

  10. 15 October 2007

    Vote

    At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.

    Source: Floor

  11. 15 October 2007

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 2295.

    Source: Floor

  12. 15 October 2007

    Floor

    Considered under suspension of the rules. (consideration: CR H11513-11516)

    Source: Floor

  13. 15 October 2007

    Floor

    Ms. Baldwin moved to suspend the rules and pass the bill, as amended.

    Source: Floor

  14. 15 October 2007

    Calendars

    Placed on the Union Calendar, Calendar No. 236.

    Source: Calendars

  15. 15 October 2007

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-379.

    Source: Committee

  16. 15 October 2007

    Reported

    Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-379.

    Source: Committee

  17. 16 October 2007

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: Floor

  18. 16 October 2007

    Vote

    On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 411 - 3 (Roll no. 970). (text: CR 10/15/2007 H11513-11514)

    Source: Floor

  19. 16 October 2007

    Vote

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 411 - 3 (Roll no. 970).(text: CR 10/15/2007 H11513-11514)

    Source: Floor

  20. 16 October 2007

    Floor

    Considered as unfinished business. (consideration: CR H11586)

    Source: Floor

  21. 17 October 2007

    Introduced

    Received in the Senate.

    Source: IntroReferral

  22. 30 October 2007

    Calendars

    Read the first time. Placed on Senate Legislative Calendar under Read the First Time.

    Source: Calendars

  23. 31 October 2007

    Calendars

    Read the second time. Placed on Senate Legislative Calendar under General Orders. Calendar No. 457.

    Source: Calendars

Votes

No vote records are attached yet.

Versions

Documents

10 official files

Placed on Calendar Senate (text)

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  • Placed on Calendar Senate (text)

    Placed on Calendar Senate · EN · 31 October 2007

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  • Placed on Calendar Senate (PDF)

    Placed on Calendar Senate · EN · 31 October 2007

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  • Engrossed in House (text)

    Engrossed in House · EN · 16 October 2007

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  • Engrossed in House (PDF)

    Engrossed in House · EN · 16 October 2007

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  • Passed House amended

    summary · EN · 16 October 2007

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  • Reported in House (text)

    Reported in House · EN · 15 October 2007

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  • Reported in House (PDF)

    Reported in House · EN · 15 October 2007

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  • Introduced in House (text)

    Introduced in House · EN · 14 May 2007

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  • Introduced in House (PDF)

    Introduced in House · EN · 14 May 2007

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  • Introduced in House

    summary · EN · 14 May 2007

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Sponsors

Showing 48 of 278 sponsors and actors.

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Sources

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