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United States · Law · S

S. 1382 (110th)

ALS Registry Act

enactedUnited States· United States Congress· EN

Introduced

14 May 2007

Last action

8 October 2008 · President

Status

Became Public Law No: 110-373.

Sponsors

Sen. Reid, Harry [D-NV], Sen. Murray, Patty [D-WA], Sen. Boxer, Barbara [D-CA], Sen. Harkin, Tom [D-IA], Sen. Brown, Sherrod [D-OH], Sen. Isakson, Johnny [R-GA], Sen. Inouye, Daniel K. [D-HI], Sen. Durbin, Richard J. [D-IL], Sen. Sanders, Bernard [I-VT], Sen. Craig, Larry E. [R-ID], Sen. Baucus, Max [D-MT], Sen. Reed, Jack [D-RI], Sen. Feinstein, Dianne [D-CA], Sen. Coleman, Norm [R-MN], Sen. Cochran, Thad [R-MS], Sen. Conrad, Kent [D-ND], Sen. Clinton, Hillary Rodham [D-NY], Sen. Menendez, Robert [D-NJ], Sen. Thune, John [R-SD], Sen. Bunning, Jim [R-KY], Sen. Murkowski, Lisa [R-AK], Sen. Dole, Elizabeth [R-NC], Sen. Johnson, Tim [D-SD], Sen. Klobuchar, Amy [D-MN], Sen. Burr, Richard [R-NC], Sen. Dodd, Christopher J. [D-CT], Sen. Nelson, Bill [D-FL], Sen. Bayh, Evan [D-IN], Sen. Hagel, Chuck [R-NE], Sen. Lautenberg, Frank R. [D-NJ], Sen. Vitter, David [R-LA], Sen. Warner, John [R-VA], Sen. Schumer, Charles E. [D-NY], Sen. Bingaman, Jeff [D-NM], Sen. Lott, Trent [R-MS], Sen. DeMint, Jim [R-SC], Sen. Bennett, Robert F. [R-UT], Sen. Snowe, Olympia J. [R-ME], Sen. Dorgan, Byron L. [D-ND], Sen. Stabenow, Debbie [D-MI], Sen. Martinez, Mel [R-FL], Sen. Casey, Robert P., Jr. [D-PA], Sen. Graham, Lindsey [R-SC], Sen. Tester, Jon [D-MT], Sen. Smith, Gordon H. [R-OR], Sen. Lieberman, Joseph I. [ID-CT], Sen. Whitehouse, Sheldon [D-RI], Sen. Cardin, Benjamin L. [D-MD]

Subjects

Healthcare, Environment, Transport

Source updated

5 December 2025

Healthcare · Environment · Transport

Official sourceDownload fileView documentsShare

Summary

ALS Registry Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data. Requires the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry to review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS. Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders. Requires the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy. Requires the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 14 May 2007

    Introduced

    Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S6062-6063)

    Source: IntroReferral

  2. 14 May 2007

    Introduced

    Sponsor introductory remarks on measure. (CR S6062)

    Source: IntroReferral

  3. 14 May 2007

    Introduced

    Introduced in Senate

    Source: IntroReferral

  4. 14 November 2007

    Reported

    Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.

    Source: Committee

  5. 4 December 2007

    Calendars

    Placed on Senate Legislative Calendar under General Orders. Calendar No. 518.

    Source: Calendars

  6. 4 December 2007

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.

    Source: Committee

  7. 4 December 2007

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.

    Source: Committee

  8. 23 September 2008

    Floor

    Measure laid before Senate by unanimous consent. (consideration: CR S9230-9232)

    Source: Floor

  9. 23 September 2008

    Passed

    Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(text: CR S9230-9231)

    Source: Floor

  10. 24 September 2008

    Floor

    Held at the desk.

    Source: Floor

  11. 24 September 2008

    Floor

    Message on Senate action sent to the House.

    Source: Floor

  12. 24 September 2008

    Floor

    Received in the House.

    Source: Floor

  13. 25 September 2008

    Floor

    At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Terry objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

    Source: Floor

  14. 25 September 2008

    Floor

    DEBATE - The House proceeded with forty minutes of debate on S. 1382.

    Source: Floor

  15. 25 September 2008

    Floor

    Considered under suspension of the rules. (consideration: CR H9916-9917)

    Source: Floor

  16. 25 September 2008

    Floor

    Mr. Pallone moved to suspend the rules and pass the bill.

    Source: Floor

  17. 26 September 2008

    Action

    Cleared for White House.

  18. 26 September 2008

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: Floor

  19. 26 September 2008

    Vote

    On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)

    Source: Floor

  20. 26 September 2008

    Vote

    Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650).(text: CR 9/25/2008 H9916)

    Source: Floor

  21. 26 September 2008

    Floor

    Considered as unfinished business. (consideration: CR H10042-10043)

    Source: Floor

  22. 29 September 2008

    Floor

    Presented to President.

    Source: Floor

  23. 29 September 2008

    President

    Presented to President.

    Source: President

  24. 8 October 2008

    Became law

    Became Public Law No: 110-373.

    Source: President

  25. 8 October 2008

    Became law

    Signed by President.

    Source: BecameLaw

  26. 8 October 2008

    President

    Signed by President.

    Source: President

Votes

No vote records are attached yet.

Versions

Documents

13 official files

Public Law (text)

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  • Public Law (text)

    Public Law · EN · 8 October 2008

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  • Public Law (PDF)

    Public Law · EN · 8 October 2008

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  • Public Law

    summary · EN · 8 October 2008

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  • Enrolled Bill (text)

    Enrolled Bill · EN · 27 September 2008

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  • Enrolled Bill (PDF)

    Enrolled Bill · EN · 27 September 2008

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  • Engrossed in Senate (text)

    Engrossed in Senate · EN · 23 September 2008

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  • Engrossed in Senate (PDF)

    Engrossed in Senate · EN · 23 September 2008

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  • Reported to Senate (text)

    Reported to Senate · EN · 4 December 2007

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  • Reported to Senate (PDF)

    Reported to Senate · EN · 4 December 2007

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  • Reported to Senate with amendment(s)

    summary · EN · 4 December 2007

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  • Introduced in Senate (text)

    Introduced in Senate · EN · 14 May 2007

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  • Introduced in Senate (PDF)

    Introduced in Senate · EN · 14 May 2007

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  • Introduced in Senate

    summary · EN · 14 May 2007

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Sponsors

Showing 48 of 79 sponsors and actors.

Related records

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Direct relationships

  • Identifier matchPROJECTS_FROM

    Same us record 110-s-1382 projected from PoliticalRepo US row.

    ALS Registry Act

Sources

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