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United States · Law · HR

H.R. 5265 (110th)

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008

enactedUnited States· United States Congress· EN

Introduced

7 February 2008

Last action

8 October 2008 · President

Status

Became Public Law No: 110-361.

Sponsors

Rep. Engel, Eliot L. [D-NY-16], Rep. Burgess, Michael C. [R-TX-26], Rep. Upton, Fred [R-MI-6], Rep. Saxton, Jim [R-NJ-3], Rep. Sessions, Pete [R-TX-17], Rep. King, Peter T. [R-NY-2], Rep. Walz, Timothy J. [D-MN-1], Rep. Reyes, Silvestre [D-TX-16], Rep. Payne, Donald M. [D-NJ-10], Rep. Ferguson, Mike [R-NJ-7], Rep. Bilbray, Brian P. [R-CA-50], Rep. Ellison, Keith [D-MN-5], Rep. Neal, Richard E. [D-MA-1], Rep. Sutton, Betty [D-OH-13], Rep. Whitfield, Ed [R-KY-1], Rep. Holden, Tim [D-PA-17], Rep. Arcuri, Michael A. [D-NY-24], Rep. Gerlach, Jim [R-PA-6], Rep. McGovern, James P. [D-MA-2], Rep. Green, Gene [D-TX-29], Rep. Stupak, Bart [D-MI-1], Rep. Jackson, Jesse L., Jr. [D-IL-2], Rep. Bishop, Sanford D. [D-GA-2], Rep. Oberstar, James L. [D-MN-8], Rep. Etheridge, Bob [D-NC-2], Rep. Filner, Bob [D-CA-51], Rep. Hinojosa, Ruben [D-TX-15], Rep. Allen, Thomas H. [D-ME-1], Rep. McCollum, Betty [D-MN-4], Rep. Pastor, Ed [D-AZ-4], Rep. Shea-Porter, Carol [D-NH-1], Rep. Michaud, Michael H. [D-ME-2], Rep. Hinchey, Maurice D. [D-NY-22], Rep. Platts, Todd Russell [R-PA-19], Rep. Goode, Virgil H., Jr. [R-VA-5], Rep. McDermott, Jim [D-WA-7], Rep. Rodriguez, Ciro D. [D-TX-28], Sen. Welch, Peter [D-VT], Sen. Murphy, Christopher [D-CT], Rep. Capps, Lois [D-CA-24], Rep. Waxman, Henry A. [D-CA-33], Rep. Skelton, Ike [D-MO-4], Rep. Frank, Barney [D-MA-4], Rep. Emerson, Jo Ann [R-MO-8], Rep. Hodes, Paul W. [D-NH-2], Rep. Wolf, Frank R. [R-VA-10], Rep. LoBiondo, Frank A. [R-NJ-2], Rep. Wittman, Robert J. [R-VA-1]

Subjects

Healthcare, Transport, Education

Source updated

6 December 2025

Healthcare · Transport · Education

Official sourceDownload fileView documentsShare

Summary

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2008 - Amends the Public Health Service Act to designate centers of excellence for research on various forms of muscular dystrophy as Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers. Requires the Muscular Dystrophy Interagency Coordinating Committee to give special consideration to enhancing the clinical research infrastructure required to test emerging therapies for the various forms of muscular dystrophy. Requires the Secretary of Health and Human Services to ensure that any data on patients that is collected as part of the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet) is regularly updated to reflect changes in patient condition over time. Requires the Director of the Centers for Disease Control and Prevention (CDC) to: (1) report to the appropriate congressional committees on MD STARnet and data collection; and (2) provide prospective health outcome data on the health and survival of people with muscular dystrophy. Requires the Director of CDC, in carrying out a program to provide information and education on muscular dystrophy to health professionals and the general public, to: (1) partner with leaders in the muscular dystrophy patient community; and (2) widely disseminate the Duchenne-Becker muscular dystrophy care considerations. Requires the Director of the Agency for Healthcare Research and Quality to: (1) evaluate the available scientific evidence to develop and issue an initial set of care considerations for Duchenne-Becker muscular dystrophy and provide ongoing review and updates where appropriate; and (2) replicate the same methodology used to develop such care considerations as a model for other muscular dystrophies.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 7 February 2008

    Referred

    Referred to the Subcommittee on Health.

    Source: Committee

  2. 7 February 2008

    Introduced

    Referred to the House Committee on Energy and Commerce.

    Source: IntroReferral

  3. 7 February 2008

    Introduced

    Introduced in House

    Source: IntroReferral

  4. 7 February 2008

    Introduced

    Introduced in House

    Source: IntroReferral

  5. 17 September 2008

    Reported

    Ordered to be Reported (Amended) by Voice Vote.

    Source: Committee

  6. 17 September 2008

    Committee

    Committee Consideration and Mark-up Session Held.

    Source: Committee

  7. 23 September 2008

    Floor

    At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Burgess objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.

    Source: Floor

  8. 23 September 2008

    Floor

    DEBATE - The House proceeded with forty minutes of debate on H.R. 5265.

    Source: Floor

  9. 23 September 2008

    Floor

    Considered under suspension of the rules. (consideration: CR H8676-8678)

    Source: Floor

  10. 23 September 2008

    Floor

    Mr. Pallone moved to suspend the rules and pass the bill, as amended.

    Source: Floor

  11. 24 September 2008

    Floor

    Considered as unfinished business. (consideration: CR H9305-9306)

    Source: Floor

  12. 24 September 2008

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: Floor

  13. 24 September 2008

    Vote

    On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633). (text: CR 9/23/2008 H8676-8677)

    Source: Floor

  14. 24 September 2008

    Vote

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by recorded vote (2/3 required): 418 - 2 (Roll no. 633).(text: CR 9/23/2008 H8676-8677)

    Source: Floor

  15. 25 September 2008

    Introduced

    Received in the Senate.

    Source: IntroReferral

  16. 26 September 2008

    Passed

    Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.

    Source: Floor

  17. 26 September 2008

    Floor

    Measure laid before Senate by unanimous consent. (consideration: CR S9605-9606)

    Source: Floor

  18. 27 September 2008

    Passed

    Motion to reconsider laid on the table Agreed to without objection.

    Source: ResolvingDifferences

  19. 27 September 2008

    Passed

    On motion that the House agree to the Senate amendment Agreed to without objection. (text as House agreed to Senate amendment: CR H10176-10177)

    Source: ResolvingDifferences

  20. 27 September 2008

    Passed

    Resolving differences -- House actions: On motion that the House agree to the Senate amendment Agreed to without objection.(text as House agreed to Senate amendment: CR H10176-10177)

    Source: NotUsed

  21. 27 September 2008

    ResolvingDifferences

    Mr. Pallone asked unanimous consent that the House agree to the Senate amendment. (consideration: CR H10176-10177)

    Source: ResolvingDifferences

  22. 27 September 2008

    Action

    Cleared for White House.

  23. 30 September 2008

    Floor

    Presented to President.

    Source: Floor

  24. 30 September 2008

    President

    Presented to President.

    Source: President

  25. 8 October 2008

    Became law

    Became Public Law No: 110-361.

    Source: President

  26. 8 October 2008

    Became law

    Signed by President.

    Source: BecameLaw

  27. 8 October 2008

    President

    Signed by President.

    Source: President

Votes

No vote records are attached yet.

Versions

Documents

14 official files

Public Law (text)

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  • Public Law (text)

    Public Law · EN · 8 October 2008

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  • Public Law (PDF)

    Public Law · EN · 8 October 2008

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  • Public Law

    summary · EN · 8 October 2008

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  • Enrolled Bill (text)

    Enrolled Bill · EN · 28 September 2008

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  • Enrolled Bill (PDF)

    Enrolled Bill · EN · 28 September 2008

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  • Engrossed Amendment Senate (text)

    Engrossed Amendment Senate · EN · 27 September 2008

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  • Engrossed Amendment Senate (PDF)

    Engrossed Amendment Senate · EN · 27 September 2008

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  • Received in Senate (text)

    Received in Senate · EN · 25 September 2008

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  • Received in Senate (PDF)

    Received in Senate · EN · 25 September 2008

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  • Engrossed in House (text)

    Engrossed in House · EN · 24 September 2008

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  • Engrossed in House (PDF)

    Engrossed in House · EN · 24 September 2008

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  • Introduced in House (text)

    Introduced in House · EN · 7 February 2008

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  • Introduced in House (PDF)

    Introduced in House · EN · 7 February 2008

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  • Introduced in House

    summary · EN · 7 February 2008

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