Expressing the sense of Congress in support of further research and activities to increase public awareness, professional education, diagnosis, and treatment of Dandy-Walker syndrome and hydrocephalus.

Summary

Commends the Director of the National Institutes of Health (NIH) for working with leading scientists and researchers to organize the first NIH conference on hydrocephalus in September 2005 and the Inaugural Cerebellar Development: Bench to Bedside International Conference in November 2006. Expresses the sense of Congress that: (1) the Director of NIH should continue the current collaboration, with respect to Dandy-Walker syndrome, among the National Human Genome Research Institute, the National Institute of Biomedical Imaging and Bioengineering, the National Institute of Child Health and Human Development, the National Institute of Neurological Disorders and Stroke, and the Office of Rare Diseases; (2) further research into such syndrome should be conducted and supported; (3) NIH should take the lead in sponsoring an annual workshop to increase awareness and set national research priorities for such syndrome and hydrocephalus; (4) the Centers for Disease Control and Prevention (CDC) should form a coordinating committee for such syndrome and hydrocephalus research; and (5) public awareness and professional education regarding Dandy-Walker research should increase through partnerships between the federal government and patient advocacy organizations.

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11 official files

• Enrolled Bill (text)

  Enrolled Bill · EN · 22 September 2008

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• Enrolled Bill (PDF)

  Enrolled Bill · EN · 22 September 2008

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• Passed Senate without amendment

  summary · EN · 22 September 2008

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• Referred in Senate (text)

  Referred in Senate · EN · 27 June 2008

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• Referred in Senate (PDF)

  Referred in Senate · EN · 27 June 2008

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• Engrossed in House (text)

  Engrossed in House · EN · 26 June 2008

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• Engrossed in House (PDF)

  Engrossed in House · EN · 26 June 2008

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• Passed House amended

  summary · EN · 26 June 2008

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• Introduced in House (text)

  Introduced in House · EN · 24 May 2007

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• Introduced in House (PDF)

  Introduced in House · EN · 24 May 2007

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• Introduced in House

  summary · EN · 24 May 2007

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