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United States · Bill · S

S. 1379 (107th)

Rare Diseases Act of 2001

openUnited States· United States Congress· EN

Introduced

3 August 2001

Last action

18 December 2001 · Calendars

Status

Placed on Senate Legislative Calendar under General Orders. Calendar No. 298.

Sponsors

Sen. Kennedy, Edward M. [D-MA], Sen. Hatch, Orrin G. [R-UT], Sen. Hollings, Ernest F. [D-SC], Sen. Bingaman, Jeff [D-NM], Sen. Durbin, Richard J. [D-IL], Sen. Jeffords, James M. [I-VT], Sen. Clinton, Hillary Rodham [D-NY], Sen. Smith, Gordon H. [R-OR], Sen. Collins, Susan M. [R-ME], Sen. Kerry, John F. [D-MA], Sen. Feinstein, Dianne [D-CA], Sen. Cantwell, Maria [D-WA], Sen. Inouye, Daniel K. [D-HI], Sen. Landrieu, Mary L. [D-LA], Sen. Dodd, Christopher J. [D-CT], Sen. Warner, John [R-VA], Sen. Edwards, John [D-NC], Sen. Daschle, Thomas A. [D-SD], Sen. Wellstone, Paul D. [D-MN], Sen. Baucus, Max [D-MT], Sen. Johnson, Tim [D-SD], Sen. Schumer, Charles E. [D-NY]

Subjects

Healthcare

Source updated

21 April 2025

Healthcare

Official sourceDownload fileView documentsShare

Summary

Rare Diseases Act of 2001 - Amends the Pubic Health Service Act to: (1) establish an Office of Rare Diseases at the National Institutes of Health; and (2) provide for rare disease regional centers of excellence. Sets forth the duties of such Office and regional centers, including research and educational duties. Defines rare disease as any disease or condition affecting less than 200,000 persons in the United States. Amends the Orphan Drug Act to authorize appropriations for FY 2002 for grants and contracts for the development of drugs for rare diseases and conditions.

This text is taken from the official record. PoliticalRepo does not editorialize.

Timeline

  1. 3 August 2001

    Introduced

    Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Source: IntroReferral

  2. 3 August 2001

    Introduced

    Sponsor introductory remarks on measure. (CR S8952)

    Source: IntroReferral

  3. 3 August 2001

    Introduced

    Introduced in Senate

    Source: IntroReferral

  4. 16 October 2001

    Reported

    Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.

    Source: Committee

  5. 18 December 2001

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. With written report No. 107-129.

    Source: Committee

  6. 18 December 2001

    Reported

    Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. With written report No. 107-129.

    Source: Committee

  7. 18 December 2001

    Calendars

    Placed on Senate Legislative Calendar under General Orders. Calendar No. 298.

    Source: Calendars

Votes

No vote records are attached yet.

Versions

Documents

6 official files

Reported to Senate (text)

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Leesvertaling

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  • Reported to Senate (text)

    Reported to Senate · EN · 18 December 2001

    ViewDownloadOpen at official source

  • Reported to Senate (PDF)

    Reported to Senate · EN · 18 December 2001

    ViewDownloadOpen at official source

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  • Reported to Senate with amendment(s)

    summary · EN · 18 December 2001

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  • Introduced in Senate (text)

    Introduced in Senate · EN · 3 August 2001

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  • Introduced in Senate (PDF)

    Introduced in Senate · EN · 3 August 2001

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  • Introduced in Senate

    summary · EN · 3 August 2001

    Open at official source

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Sponsors

Related records

Sources

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