United States · Law · HR
H.R. 4013 (107th)
Rare Diseases Act of 2002
Introduced
20 March 2002
Last action
6 November 2002 · President
Status
Became Public Law No: 107-280.
Sponsors
Rep. Shimkus, John [R-IL-15], Rep. Waxman, Henry A. [D-CA-33], Rep. Foley, Mark [R-FL-16], Sen. Brown, Sherrod [D-OH], Rep. Roukema, Marge [R-NJ-5], Rep. Rush, Bobby L. [D-IL-1], Rep. King, Peter T. [R-NY-2], Rep. Greenwood, James C. [R-PA-8], Rep. Dingell, John D. [D-MI-12], Rep. McGovern, James P. [D-MA-2], Rep. Horn, Stephen [R-CA-38], Rep. Smith, Christopher H. [R-NJ-4], Rep. McKinney, Cynthia A. [D-GA-4], Rep. Morella, Constance A. [R-MD-8], Rep. Wynn, Albert Russell [D-MD-4], Rep. Green, Gene [D-TX-29], Rep. Towns, Edolphus [D-NY-10], Rep. Frank, Barney [D-MA-4], Rep. Lynch, Stephen F. [D-MA-8], Rep. Pallone, Frank [D-NJ-6], Rep. Rivers, Lynn N. [D-MI-13], Rep. Capps, Lois [D-CA-24], Rep. Miller, George [D-CA-11], Rep. DeGette, Diana [D-CO-1], Rep. Weldon, Dave [R-FL-15], Rep. Hoeffel, Joseph M. [D-PA-13], Rep. Lantos, Tom [D-CA-12], Rep. Stupak, Bart [D-MI-1], Rep. Mink, Patsy T. [D-HI-2], Rep. Kelly, Sue W. [R-NY-19], Rep. Slaughter, Louise McIntosh [D-NY-25], Rep. McDermott, Jim [D-WA-7], Rep. Woolsey, Lynn C. [D-CA-6], Rep. Platts, Todd Russell [R-PA-19], Rep. Velázquez, Nydia M. [D-NY-7], Rep. Kind, Ron [D-WI-3], Rep. Johnson, Nancy L. [R-CT-5], Rep. Bonior, David E. [D-MI-10], Rep. Wexler, Robert [D-FL-19], Del. Norton, Eleanor Holmes [D-DC-At Large], Rep. Lucas, Frank D. [R-OK-3], Rep. Moran, James P. [D-VA-8], Sen. Sununu, John E. [R-NH], Sen. Isakson, Johnny [R-GA], Rep. Lowey, Nita M. [D-NY-17], Rep. Olver, John W. [D-MA-1], Rep. Schakowsky, Janice D. [D-IL-9], Rep. Kennedy, Patrick J. [D-RI-1]
Subjects
Healthcare
Source updated
7 April 2025
Summary
Rare Diseases Act of 2002 - Amends the Pubic Health Service Act to: (1) establish an Office of Rare Diseases at the National Institutes of Health; and (2) provide for rare disease regional centers of excellence. Sets forth the duties of such Office and regional centers, including research and educational duties. Defines rare disease as any disease or condition affecting less than 200,000 persons in the United States.
This text is taken from the official record. PoliticalRepo does not editorialize.
Timeline
20 March 2002
Introduced
Referred to the House Committee on Energy and Commerce.
Source: IntroReferral
20 March 2002
Introduced
Introduced in House
Source: IntroReferral
20 March 2002
Introduced
Introduced in House
Source: IntroReferral
2 April 2002
Referred
Referred to the Subcommittee on Health.
Source: Committee
18 June 2002
Introduced
Sponsor introductory remarks on measure. (CR H3656)
Source: IntroReferral
19 June 2002
Reported
Ordered to be Reported by Voice Vote.
Source: Committee
19 June 2002
Committee
Committee Consideration and Mark-up Session Held.
Source: Committee
26 June 2002
Reported
Reported by the Committee on Energy and Commerce. H. Rept. 107-543.
Source: Committee
26 June 2002
Calendars
Placed on the Union Calendar, Calendar No. 324.
Source: Calendars
26 June 2002
Reported
Reported by the Committee on Energy and Commerce. H. Rept. 107-543.
Source: Committee
1 October 2002
Passed
On motion to suspend the rules and pass the bill Agreed to by voice vote. (text: CR H6812-6813)
Source: Floor
1 October 2002
Passed
Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by voice vote.(text: CR H6812-6813)
Source: Floor
1 October 2002
Floor
Considered under suspension of the rules. (consideration: CR H6812-6815)
Source: Floor
1 October 2002
Floor
At the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Waxman objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
Source: Floor
1 October 2002
Floor
DEBATE - The House proceeded with forty minutes of debate on H.R. 4013.
Source: Floor
1 October 2002
Floor
Mr. Shimkus moved to suspend the rules and pass the bill.
Source: Floor
1 October 2002
Passed
Motion to reconsider laid on the table Agreed to without objection.
Source: Floor
2 October 2002
Introduced
Received in the Senate, read twice.
Source: IntroReferral
17 October 2002
Passed
Passed Senate without amendment by Unanimous Consent. (consideration: CR S10769)
Source: Floor
17 October 2002
Passed
Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.(consideration: CR S10769)
Source: Floor
18 October 2002
Floor
Message on Senate action sent to the House.
Source: Floor
28 October 2002
Floor
Presented to President.
Source: Floor
28 October 2002
President
Presented to President.
Source: President
6 November 2002
Became law
Became Public Law No: 107-280.
Source: President
6 November 2002
Became law
Signed by President.
Source: BecameLaw
6 November 2002
President
Signed by President.
Source: President
Votes
No vote records are attached yet.
Versions
- Enrolled Bill · — · Download file
- Public Law · 6 November 2002 · Download file
- Received in Senate · 2 October 2002 · Download file
- Engrossed in House · 1 October 2002 · Download file
- Reported in House · 26 June 2002 · Download file
- Introduced in House · 20 March 2002 · Download file
Documents
14 official files
Enrolled Bill (text)
This file cannot be previewed here. Use View or Download.
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Enrolled Bill (text)
Enrolled Bill · EN
Enrolled Bill (PDF)
Enrolled Bill · EN
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Public Law (text)
Public Law · EN · 6 November 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Public Law (PDF)
Public Law · EN · 6 November 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Received in Senate (text)
Received in Senate · EN · 2 October 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Received in Senate (PDF)
Received in Senate · EN · 2 October 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Engrossed in House (text)
Engrossed in House · EN · 1 October 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Engrossed in House (PDF)
Engrossed in House · EN · 1 October 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Reported in House (text)
Reported in House · EN · 26 June 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Reported in House (PDF)
Reported in House · EN · 26 June 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Reported to House without amendment
summary · EN · 26 June 2002
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Introduced in House (text)
Introduced in House · EN · 20 March 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Introduced in House (PDF)
Introduced in House · EN · 20 March 2002
ViewDownloadOpen at official source
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Introduced in House
summary · EN · 20 March 2002
Leesvertaling
Vertaal dit document naar jouw taal. PoliticalRepo bewaart geen aparte kopie per EU-taal.
Documentvertaling op verzoek met downloadbare PDF (logo + link naar de officiële bron). Het bronbestand blijft leidend.
Sponsors
- Rep. Shimkus, John [R-IL-15] · R · Sponsor
- Rep. Waxman, Henry A. [D-CA-33] · D · Sponsor
- Rep. Foley, Mark [R-FL-16] · R · Sponsor
- Sen. Brown, Sherrod [D-OH] · D · Sponsor
- Rep. Roukema, Marge [R-NJ-5] · R · Sponsor
- Rep. Rush, Bobby L. [D-IL-1] · D · Sponsor
- Rep. King, Peter T. [R-NY-2] · R · Sponsor
- Rep. Greenwood, James C. [R-PA-8] · R · Sponsor
- Rep. Dingell, John D. [D-MI-12] · D · Sponsor
- Rep. McGovern, James P. [D-MA-2] · D · Cosponsor
- Rep. Horn, Stephen [R-CA-38] · R · Cosponsor
- Rep. Smith, Christopher H. [R-NJ-4] · R · Cosponsor
- Rep. McKinney, Cynthia A. [D-GA-4] · D · Cosponsor
- Rep. Morella, Constance A. [R-MD-8] · R · Cosponsor
- Rep. Wynn, Albert Russell [D-MD-4] · D · Cosponsor
- Rep. Green, Gene [D-TX-29] · D · Cosponsor
- Rep. Towns, Edolphus [D-NY-10] · D · Cosponsor
- Rep. Frank, Barney [D-MA-4] · D · Cosponsor
- Rep. Lynch, Stephen F. [D-MA-8] · D · Cosponsor
- Rep. Pallone, Frank [D-NJ-6] · D · Cosponsor
- Rep. Rivers, Lynn N. [D-MI-13] · D · Cosponsor
- Rep. Capps, Lois [D-CA-24] · D · Cosponsor
- Rep. Miller, George [D-CA-11] · D · Cosponsor
- Rep. DeGette, Diana [D-CO-1] · D · Cosponsor
- Rep. Weldon, Dave [R-FL-15] · R · Cosponsor
- Rep. Hoeffel, Joseph M. [D-PA-13] · D · Cosponsor
- Rep. Lantos, Tom [D-CA-12] · D · Cosponsor
- Rep. Stupak, Bart [D-MI-1] · D · Cosponsor
- Rep. Mink, Patsy T. [D-HI-2] · D · Cosponsor
- Rep. Kelly, Sue W. [R-NY-19] · R · Cosponsor
- Rep. Slaughter, Louise McIntosh [D-NY-25] · D · Cosponsor
- Rep. McDermott, Jim [D-WA-7] · D · Cosponsor
- Rep. Woolsey, Lynn C. [D-CA-6] · D · Cosponsor
- Rep. Platts, Todd Russell [R-PA-19] · R · Cosponsor
- Rep. Velázquez, Nydia M. [D-NY-7] · D · Cosponsor
- Rep. Kind, Ron [D-WI-3] · D · Cosponsor
- Rep. Johnson, Nancy L. [R-CT-5] · R · Cosponsor
- Rep. Bonior, David E. [D-MI-10] · D · Cosponsor
- Rep. Wexler, Robert [D-FL-19] · D · Cosponsor
- Del. Norton, Eleanor Holmes [D-DC-At Large] · D · Cosponsor
- Rep. Lucas, Frank D. [R-OK-3] · R · Cosponsor
- Rep. Moran, James P. [D-VA-8] · D · Cosponsor
- Sen. Sununu, John E. [R-NH] · R · Cosponsor
- Sen. Isakson, Johnny [R-GA] · R · Cosponsor
- Rep. Lowey, Nita M. [D-NY-17] · D · Cosponsor
- Rep. Olver, John W. [D-MA-1] · D · Cosponsor
- Rep. Schakowsky, Janice D. [D-IL-9] · D · Cosponsor
- Rep. Kennedy, Patrick J. [D-RI-1] · D · Cosponsor
Showing 48 of 56 sponsors and actors.
Related records
- related to ← Rare Diseases Act of 2001
Related across the Repo ecosystem
Direct relationships are identifier-backed. Topic context means shared TopicMembership — not a citation and not causation.
Direct relationships
- Legal framework · Rare Diseases Act of 2002 · H.R. 4013 (107th) · US
- Identifier matchPROJECTS_FROM
Same us record 107-hr-4013 projected from PoliticalRepo US row.
Sources
PoliticalRepo is an index and interpretation layer, not the authoritative legal source.
- Official source: https://www.congress.gov/bill/107th-congress/house-bill/4013
- Open data entity: https://api.congress.gov/v3/bill/107/hr/4013
- us · 107-hr-4013 · source updated 7 April 2025